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Jijer
jijer.bsky.social
did:plc:752yj5k6d4hzx3j37ii7phpn
As a rare disease patient, I made great friends through patient support groups. We were so excited to meet at the annual FDA-NIH Rare Disease Day tomorrow. But it’s cancelled.
https://udnf.org/udnf-statement-on-rare-disease-day-2025-cancellation-research-funding-and-policy-impacts-on-the-ultra-rare-and-undiagnosed-community/
2025-02-27T03:10:05.371Z